by NIKKI STOKES

This article will appear in Fightback’s upcoming September issue on Accessibility. To support our work, consider subscribing to our e-publication ($NZ20 annually) or print magazine ($NZ60 annually). You can subscribe with PayPal or credit card here.

When our landlord issued a 90 day notice of intent to take back occupation of the home my young family had been renting for two years, I did what most people in my generation have had to do at some point; I spent hours of my time desperately scouring real estate websites, publications and new paper listings in hopes of finding another home to rent at a time when demand significantly outstrips supply.

Unlike the majority of hopeful tenants, however, I dismissed most of the available properties without forwarding an application. Instead I went into the Ministry of Social Development and applied for social housing in hope they could make up for the lack of private rental houses that would be even minimally accessible to my mobility impaired daughter.

I was advised to continue looking for private housing and to keep my daughter’s disability a secret to prevent any discomfort from potential landlords. The wait time for social housing would be months, perhaps years, and emergency housing providers would unlikely be able or willing to accommodate a family with our requirements.

By luck we were able to secure a private rental and with some hefty funding for a temporary ramp, hoist system and fancy shower chair, the house was made minimally accessible to her basic care needs.

Housing and erasure

While stories like this are seldom heard in the well chewed-over discussions on housing challenges and solutions, they are hardly isolated.

In October 2017 the United Nations Office of the High Commissioner Special Rapporteur on the Right to Housing presented a report on the right to adequate housing for persons with disabilities¹. The report highlights the fact that globally, the right to adequate housing remains beyond reach for most persons with disability and that legislation and policy have generally ignored the need for action to protect the right to housing for disabled people.

For people with disabilities, being unable to access suitable and secure housing compromises the choices available to them within their communities. If housing cannot be secured, a person may be forced into living with family members beyond a time period that they feel is appropriate. If housing is not suitably accessible, or cannot be reasonably modified to enable independence, a person may find themselves reliant on disability support workers. If housing is not located convenient to community facilities, support, employment or reliable and accessible public transport, a person with disabilities may find themselves isolated and struggling to participate fully in society.This creates vulnerability as disabled people are forced into situations where they cannot fully exercise their human rights. and reinforces harmful narratives of the burden of disability on society.

In such a society disabled people are actively erased. While 2013 census data estimated that a total of 1.1 million people, or 24% of New Zealanders were disabled it is estimated that only 2% of our housing stock is accessible. As the United Nations report says: “Most housing and development is designed as if persons with disabilities do not exist, will not live there or deserve no consideration”.

While numerous organisations and consumer groups representing various disabled groups have highlighted the urgent need for minimum accessibility standards and action for access to adequate housing, little meaningful action has occured at Government level. Housing accessibility is protected in the United Nations Convention on the Rights of Persons with Disabilities², to which New Zealand is a signatory. It is therefore fundamental to our responsibilities to Disabled People that any future policy or initiatives intended to address housing be centred around ensuring a minimum level of accessibility.

Is KiwiBuild accessible?

The term “universal design” was coined by the architect Ronald Mace to describe the concept of designing all products and the built environment to be aesthetic and usable to the greatest extent possible by everyone, regardless of their age, ability, or status in life³. When comparing the cost of incorporating Universal Design into new builds against the cost of retrofitting those same builds, it soon becomes clear that failure to ensure accessibility in housing policy and initiatives is not only creating undue hardship to to persons with disability, but it is a poor economic choice in the longterm. According to the research, testing and consulting organisation BRANZ (www.branz.co.nz), building using concepts of Universal Design would add little additional cost (around $3,000 per dwelling). Yet retrofitting a building that has not been built to an accessible standard may well cost over $20,000.

The much-lauded KiwiBuild programme has made no assurances to or carried out consultation with any of the organisations representing disabled people. This seems at best counter productive to the purpose of state funded housing projects, and at worst a significant breach of Human Rights. A society that intends to be inclusive must begin with fully accessible communities, including access to housing for disabled people, and also “visitablity” – the ability to access the homes of friends, family and community members to ensure full and uncompromised participation in society.

The costs of not building new homes or carrying out renovations to a minimum standard of accessibility are significant, and in New Zealand that cost falls upon our already very stretched Health system. Funding for modifications is difficult and time-consuming to access, has strict limits that place financial burdens on disabled people and their families, and is not accessible to people who are unable to secure stable long term accommodation.

Recently Phil Twyford, the Minister championing the Kiwibuild programme was invited to speak at the Universal Design Conference of 2018. While his speech conveyed his recognition of the challenges of access to housing to that disabled people face and a need to ensure a diversity of housing stock to meet a diversity of need and family structure, it is concerning that no firm commitment has been made to ensure that a minimum standard of accessibility will be applied to the Kiwibuild programme.

Community connections

It was also announced in September this year that a new social housing development has been planned for Otara, incorporating features to meet the needs of disabled tenants. While 71 apartments have been planned for the development, only seven ground level apartments have been specifically planned to accommodate mobility impaired individuals. While there are many disabilities and needs beyond mobility impairment, this does not reflect that 14% of New Zealanders (over half of the disability community) have a mobility impairment.

Moreover, for people with disability, the ability to maintain connections with their communities and supports are vital. Creating separate communities for disabled people to exist in, rather than ensuring all housing provides the ability to accommodate all disabilities, forces people with disabilities to be cut off from their supports, their communities and to remain invisible.

As a carer the strain of inadequate housing cannot be understated. It has created an ongoing cycle of instability and crisis for our family. The struggle to find adequate housing in our local community has forced us to sever ties with our support networks, deal with transfer and inconsistency of service provision and case management, feel frequently vulnerable and exposed having unfamiliar care staff coming into our home, and struggle to find inclusive social situations. The lack of access to fully accessible housing or to state funded modifications has required that my physical safety and the safety of my child be compromised in the process of providing basic care.

Leaving disabled people vulnerable and without choices, and placing additional strain on their families and carers by failing to ensure adequate housing, continues to result in terrible human rights abuses for people with disabilities. We have a responsibility and the capability to ensure that adequate and secure housing is an accessible right for all.